I’m going to apologize in advance for my meltdown. I just want to act like a two year old for a minute. I want to kick my feet and bang my head against the wall and scream not fair!
My daughter Emily, who is only 14, and has a disease called Ehler’s Danlos with Hypermobility Syndrome, now may have one more thing to contend with. She already has reflux, asthma, normal allergies, skin sensitivities to all kinds of things, allergies to certain medicines and now may have an allergy to a food. She is already allergic to tomatoes, crazy, I know. Not a severe allergy but enough that it triggers her reflux which then aggravates her asthma.
The past couple of days she has been breaking out with hives and which each day they are getting bigger and more spread out and with a stronger reaction. Since I already have one child with severe allergies (my son) I knew what this meant, get to the doctor. Last night the place where the hives were, was as large as a volleyball. Bright pink and full of huge hives. We even snapped a pic on her IPod so we could show the doctor. I highly recommend doing that because even though we didn’t get a great pic, it still was enough for the doctor to look at it and say, “Yep, that’s a food allergy!”
So today my baby girl had her blood drawn for the umpteenth time and now we wait to find out if it’s nut (been eating some nutty buddies), eggs, dairy, wheat, etc. And I’ve been doing some research and found out that people with Ehler’s Danlos seem to be predisposition to have food allergies. Go figure!
I was really hoping we were done with new things. Each person in my house already has some type of food allergy/sensitivity, but I was really hoping we were done with all of this. Everything seemed to be cruising along, normal even. It was really nice! Please don’t get me wrong, I know that this is certainly not the worst thing in the world. Simple even and could be 100 times worse. But it is scary dealing with epi-pens and food allergies and I didn’t want her to have one more thing to worry about. It already overwhelms her at times. No child should have to go through illness, no matter what it is.
Ok, I’m done whining (I’m actually smiling now, really!) Thanks for letting me vent. I just needed to get it out of my system.
I’m sorry your daughter has to go through that. I hope they are able to figure out what is wrong.I can’t imagine dealing with all of those different things in the same person. One of my sons has “reactive airway disease” which is asthma-like whenever he gets a cold, and another has food intolerances, but none of them have ever broken out in hives over food, at least yet.
Thanks so much Jenni! It can be really frustrating at times, but thankfully each new thing has come at different times allowing us time to adjust to adding on something new. I have to remind myself it could always be much worse and that God is in control. I’m so sorry for what your son has, I know how frustrating that can be. I just needed to vent for minute and I’ve been blown away by the support! If you ever need to vent just let me know and I’ll listen 🙂
Have a blessed day! Tera